Who am I trying to kid! There's no way I can fathom enough energy to keep a diary of my hopefully, fingers crossed, recovery and maintainance of this disorder!
So much to do and where to start ? Diet, supplements, pacing. Did get myself a blood test to measure levels of this and that by Dr Sarah Myhill. The results back up what i've suffered and been complaining about for 20 odd years!!! The doctors either don't care. Have a financial interest on keeping you on prescribed medication, concerned about lawsuits ( and so they should be ! ) Their incompetence is ridiculous.
Oh you have post natal depression. Then just plain depression. Tested for under - active thyroid, over active thyroid. Diabetes. Eventually at the aged of 30yrs. One doctor tested for B12 levels. Ultra low they were, at 122 ! Normal levels being between 500-700. Low if they were at 400.
Re-curring h pylori, I investigated. Stopping smoking will help prevent it coming back, due to a lack of blood flow in that area, due to smoking. I asked the doctor to assist me with stopping smoking.
He response!!! ' You're not ready to stop smoking just yet'
Bloody hell, even the nurse at the stop smoking meeting, freaked.
I comprehend, it would be silly to stop cold turkey, seeing as my whole central nervous system is fucked!, but hey ho, I'd like to give it a go. I believe if I rid of the stomach issues, I can manage my disorder a hell of a lot easier.
So, do I try gluten free, diary free diet. 'No', the doctor said, 'it's not that'.
' Ok, what can I do to help get myself better ' I replied in dismay.
'There's nothing you can do, you're on these tablets for life'
Another time I went to see him. After realising the reason I was always looking so good and well, was because my appointments to see him and get my provigil always coincided with an appointment briefly after seeing the nurse for my B12 injection! I always felt a bit better for 7-10 days after getting that jag.
So, I made sure my next appointment was not after so. I went in, looking like death, pleading with him. To be told, ' You have to work with me, I can't help you if you don't work with me '
What the hell!!! I suggest I want to try changing my diet, stop smoking, healthy life style and all I get. Told to eat lots of veg, and no it didn't matter if it was organic.That's all I've been doing all my life. working on trials and errors to rid myself of this horrible disability.
So there it began. Jan 09, I started keeping sleep diary's, food diary's, continued using every waking moment to investigate how to better myself, myself! That's when I came across Dr. Sarah Myhill's website.
Tuesday, 6 October 2009
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